Category Archives: My journey towards independence

My journey from utter helplessness to independence

Day 407

Twitter is helping to create world peace by making us realize that regardless of how different we may be we all want to be loved and validated – that’s what I learned today 🙂

It’s 7: 09 PM on day 407 of my journey towards independence and I’ve managed to brush my teeth, feed myself a boiled egg for breakfast, drink coffee by myself,  publish my Disability of the Day feature, tweet about my Clean Water For All Campaign – no luck –   feed myself rice and curry for lunch, watch TV,  feed myself a banana for dinner and brush my teeth once more.

As you probably know by now if you’ve been reading by blog for a while I LOVE LOVE LOVE Twitter – a micro-blogging platform which boasts millions of users ranging from celebrities to teachers from all over the world– so today I’m going to tell you why am I love it so much, give you the definitions of the symbols and terms commonly used on Twitter and share with you some of my Twitter tips and tricks. Take a look:

Twitter 101: Everything you need to know before you click Log in

Why do I love Twitter?

1. The fact that I have Cerebral Palsy means that most people who I meet in person will have preconceived notions about me whereas on Twitter it’s a non-issue because people cannot see me – people only find out that I have Cerebral Palsy when I tell them, when they read my Twitter bio or when they log on to this blog.

2. You get to meet all sorts of people from different walks of life – teachers, doctors, lawyers, celebrities – who live oceans away from you and share in their lives – my friend, Emma (@sapphire100), who I have been interacting with via Twitter for months just had a baby (congratulations again Emma) and she sent me a picture of her son, Aiden Tate, a few days ago.

3. It has made it possible for me to raise thousands of dollars for my campaign without stepping a foot outside my house – I can’t drive and my parents are teachers who work eight hours a days so it would be impossible for me to go to the mall and set up a stand or something to raise money for my campaign.

4. It has exposed this blog to a worldwide audience at no cost to me – every time I publish a new post the name of my post and the link to the post appears automatically on my Twitter profile because I turned on the ‘publicize’ feature on this blog.

Symbols and terms commonly used on Twitter

#

The # symbol, called a hashtag, is used to mark keywords or topics in a Tweet. It was created organically by Twitter users as a way to categorize messages.

@

The @ sign is used to call out usernames in Tweets, like this: Hello @Twitter! When a username is preceded by the @ sign, it becomes a link to a Twitter profile.

Avatar

The personal image uploaded to your Twitter profile in the Settings tab of your account.

Bio

A short personal description of 160 characters or fewer used to define who you are on Twitter.

Blocking

To block someone on Twitter means they will be unable to follow you or add you to their lists, and we will not deliver their mentions to your mentions tab.

Direct Message

Also called a DM and most recently called simply a “message,” these Tweets are private between the sender and recipient. Tweets sent over SMS become DMs when they begin with “d username” to specify who the message is for.

Favorite

To favorite a Tweet means to mark it as one of your favorites by clicking the yellow star next to the message.

Follow

To follow someone on Twitter is to subscribe to their Tweets or updates on the site.

Follow Count

The numbers that reflect how many people you follow, and how many people follow you. Found on your Twitter Profile.

Follower

A follower is another Twitter user who has followed you.

Following

Your following number reflects the quantity of other Twitter users you have chosen to follow on the site.

Handle

A user’s “Twitter handle” is the username they have selected and the accompanying URL, like so: http://twitter.com/username.

Home Timeline

A real-time list of Tweets from those you follow. It appears on your Twitter home page.

Listed

To be included in another Twitter user’s list. Listed numbers and details appear in the statistics section of your profile.

Lists

Curated groups of other Twitter users. Used to tie specific individuals into a group on your Twitter account. Displayed on the right side menu of your homepage.

Mention

Mentioning another user in your Tweet by including the @ sign followed directly by their username is called a “mention”. Also refers to Tweets in which your username was included.

Profile

A Twitter page displaying information about a user, as well as all the Tweets they have posted from their account.

Reply

A Tweet posted in reply to another user’s message, usually posted by clicking the “reply” button next to their Tweet in your timeline. Always begins with @username.

Retweet (noun)

A Tweet by another user, forwarded to you by someone you follow. Often used to spread news or share valuable findings on Twitter.

Retweet (verb)

To retweet, retweeting, retweeted. The act of forwarding another user’s Tweet to all of your followers.

RT

Abbreviated version of “retweet.” Placed before the retweeted text when users manually retweet a message.

Trending Topic

A subject algorithmically determined to be one of the most popular on Twitter at the moment.

Tweet (verb)

Tweet, tweeting, tweeted. The act of posting a message, often called a “Tweet”, on Twitter.

Tweet (noun)

A message posted via Twitter containing 140 characters or fewer.

My Twitter Tips and Tricks

1. When you log in to Twitter the first time around click on the ‘Who to Follow’ tab at the top of your screen, type in whatever your interested in and start interacting with people who share your interest chances are they will follow you.

2. ALWAYS follow back someone who follows you because otherwise they’ll unfollow you unless that user is not the type of follow you want – I once had someone following me who tweeted about foreskin suffice to say I unfollowed him because he wasn’t my target market.

3. ALWAYS thank people for retweeting your tweets and mentioning you because whether in real life or on Twitter appreciation never goes unnoticed.

4. Reciprocate: If someone often retweets your tweets or mentions you, you should retweet their tweets and mention them whenever you can.

5. NEVER ask someone you just started interacting with on Twitter to do something for you that you would not ask a stranger on the street to do for you – when I started on Twitter I used to tweet links to my campaign to people I hadn’t even introduced myself to needless to say that didn’t go over too well (people thought I was a spammer) but then one day I realized that I should stop trying to get people to invest in my campaign and start trying to get them to invest in me by showing them who I was.

6. If you’re a blogger blogging about a specific topic e.g. Cerebral Palsy you would want your tweets about your blog post to look something like this: Day 407 #SpecialNeeds #CerebralPalsy #HumanRights #Water #TwitterTips (Note: This tweet contains two components the name of my post and the hashtags that will attract my target market to this blog).

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

If you’ve given to my cause or you can’t give now, please help me by sharing my cause with others. You can tweet about it like my friend Stan Faryna. This is the tweet he uses: @Nisha360 is a brave, smart young woman trying to make a better world for us all. Please help her do an amazing thing. http://bit.ly/hC7vOu

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 406

It’s important to leave bread crumbs as you walk this path called life so that you can find your way back easily if you ever get lost – that’s what I learned today 🙂

It’s 7: 26 PM on day 406 of my journey towards independence and I’ve managed to brush my teeth, publish my Disability of the Day feature–I prepared it yesterday night – practice typing with both my hands – I kept forgetting to use my right hand maybe I should just tie my left hand behind my back until my right hand becomes a little more dominant –   tweet about my Clean Water For All Campaign – no luck – watch TV, feed myself rice and curry for lunch,  watch  some more  TV, feed myself yoghurt for dinner and brush my teeth once more.

Today I typed a letter to my thirty-year-old self to practice item #3 on my Timeline to complete all the things I need to do to become physically independent list – typing with both hands – and I was absolutely amazed at how much I learned about myself, the people in my life and what I want for the future. Take a look:

Dear 30-year-old me,

I am writing this letter so that hopefully when you read this ten years from now you can look back on the past ten years of your life and either say I am living the kind of life I envisioned for myself when I was twenty or if you got a little sidetracked – which you often do (hopefully you’ve lost that with age) – you can say what can I do now to create the life that I envisioned for myself when I was twenty.

Ten years on I hope you’ve published ‘The Accidental Philanthropist’ – the book about how you went about raising money to build a well in India/Africa and all the wonderful people you’ve met on that journey – become physically and financially independent, travelled across Europe but most of all I hope you’re happy and that you go to bed every day grateful for something just as I do.

Before I conclude this letter which must now seem like a lecture to you I KNOW (don’t ask me how I know) that money is not and never will be a problem for you so share it with an open heart because at the end of the day what we have is not ours we are merely custodians.

Yours sincerely,
Twenty-year-old Nisha

PS. If you haven’t forgiven daddy completely for the way he’s treated you in the past just do it maybe he thought he was protecting you from discrimination by not taking you out in public not realizing that he was actually discriminating against you by doing that.

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

If you’ve given to my cause or you can’t give now, please help me by sharing my cause with others. You can tweet about it like my friend Stan Faryna. This is the tweet he uses: @Nisha360 is a brave, smart young woman trying to make a better world for us all. Please help her do an amazing thing. http://bit.ly/hC7vOu

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 405

Don’t walk behind me; I may not lead. Don’t walk in front of me; I may
not follow. Just walk beside me and be my friend. –  Albert Camus

It’s 1: 11 PM on day 405 of my journey towards independence and I’ve managed to brush my teeth, publish my Kid of the Week  feature,  prepare and publish my Disability of the Day feature,  tweet about my Clean Water For All Campaign – no luck – and feed myself pancakes with coconut and sugar for brunch.

As you know I love helping people who help others which is why I’m
sharing this tweet I stumbled across yesterday Ppl, take a min, like the
FB page. Feed a child! RT time 2 feed the world help @50cent
feed a millio… (cont) http://deck.ly/~TPA4q by @tenindenmark
(Tamela from Denmark) and reiterating her call for you to like this Facebook
page https://www.facebook.com/StreetKing and  feed a hungry child – one like =   1 meal for a hungry child and if we get the page to one million likes by tomorrow which is one week from when the campaign started 50 cent (the rapper) will double the donation.  Do you walk beside your friends and support them in whatever they do?

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

If you’ve given to my cause or you can’t give now, please help me by sharing my cause with others. You can tweet about it like my friend Stan Faryna. This is the tweet he uses: @Nisha360 is a brave, smart young woman trying to make a better world for us all. Please help her do an amazing thing. http://bit.ly/hC7vOu

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 404

You choose what you allow into your space– that’s what I learned today 🙂

It’s 6: 07 PM on day 404 of my journey towards independence and I’ve managed to brush my teeth, feed myself pancakes with coconut and sugar   for breakfast,   publish my Disability of the Day feature,  listen to music,  feed myself pizza for lunch and  tweet about my Clean Water For All Campaign – no luck today but Mihai Coman  – Stan‘s (@faryna) friend– made a donation yesterday–thanks Mihai and happy belated birthday Stan 🙂

This morning my dad picked a fight with my brother over a missing squash ball – the squash ball is just an arbitrary object almost every he picks something to fight about – and when he attempted to do the same with me over the fact that I let my brother use the ‘new’ laptop I just carried on doing what I was doing and that is something everybody can learn from when people pick a fight with you just don’t react eventually they’ll get tired of being ignored and leave you alone . Are you choosing wisely with regards to what you allow into your space?

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

If you’ve given to my cause or you can’t give now, please help me by sharing my cause with others. You can tweet about it like my friend Stan Faryna. This is the tweet he uses: @Nisha360 is a brave, smart young woman trying to make a better world for us all. Please help her do an amazing thing. http://bit.ly/hC7vOu

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 403

Everything happens for a reason is not just a cliché – that’s what I learned today 🙂

It’s 7: 25 PM on day 403 of my journey towards independence and I’ve managed to brush my teeth, prepare and publish my Disability of the Day feature, listen to music–I LOVE Mine by Taylor Swift the music video especially because I was the little girl in the video growing up (watch it below and you’ll understand which little girl I’m talking about)–  tweet about my Clean Water For All Campaign – no luck – feed myself rice and curry for lunch, go to physiotherapy –I got to leave early because I did so well 🙂 – watch TV and feed myself a  tomato  for dinner.

Yesterday my mom was helping me with my exercises – I have to exercise every day otherwise I’ll have to have surgery to get my hamstrings lengthened and I DO NOT want that – and she commented your legs are so dry and preceded to put cream/lotion on it to which I said I am more than my body parts and as I thought back on it as I caught my housekeeper’s sister staring at me – she was here to do our tenet’s hair after which she came over to help me make sandwiches (our housekeeper was busy with work) – I realized that when people see all that I do they too want to in some way go beyond themselves and that ladies and gentleman makes having Cerebral Palsy worth it. Have you found the purpose in your pain?

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

If you’ve given to my cause or you can’t give now, please help me by sharing my cause with others. You can tweet about it like my friend Stan Faryna. This is the tweet he uses: @Nisha360 is a brave, smart young woman trying to make a better world for us all. Please help her do an amazing thing. http://bit.ly/hC7vOu

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 402

In a world that seems to be filled with darkness there are some rays of light – that’s what I learned today 🙂

It’s 7: 26 PM on day 402 of my journey towards independence and I’ve managed to brush my teeth, feed myself a boiled egg for breakfast,publish my Disability of the Day feature,  tweet about my Clean Water For All Campaign – Meg Guegan–someone I don’t even know – made a donation yesterday and peaceofmindparent from Embracing Special Needs Parenthood made one today   – both these guys are awesome and I appreciate both donations but a special shoutout must go to Meg I will never get over the fact that some people give of their money in spite of the fact that nothing about me –feed myself rice and curry for lunch, exercised for a while, watch TV, feed myself a banana for dinner and brush my teeth once more.

For the past two days all I’ve been seeing on the evening news are stories of grisly murders and brutal rapes suffice to say it’s very depressing so today I am going to share with you stories that have warmed heart recently. Take a look:

Articles and a video that made  me go awww

Kate writes letter to young cancer patient

Duchess sends message of support to 9-year old Fabian
Bate

Kate writes letter to young cancer patient( c  2011 Starlounge)

The Duchess of Cambridge has followed up her recent visit to the Royal
Marsden Hospital by writing a letter to one of its young patients.

Fabian Bate, 9, was stunned last week after receiving a
handwritten note from Kate just three weeks after their initial
meeting at the Surrey children’s hospital – where she was opening a new £18
million centre with husband Prince William.

The youngster has since posted the note – written on St. James’ Palace
letterhead and dated October 13th – on his personal blog.

“I was so touched by your strength of character,” she writes. “I will keep my
fingers crossed that your heath goes from strength to strength.”

Kate also promised to keep Fabian in her ‘thoughts and prayers’ during his
battle with leukemia – an illness he was diagnosed with in 2006.

“For us as a family it was a massive boost to know that we have someone at
Kate’s level sharing our journey,” Fabian’s dad Darrell Bate
told People.

“The thought that someone in her position would take that personal interest
is a real hope-builder.”

And with the Royal note arriving on the same day Fabian returned from an
eight-day stint in hospital, the timing couldn’t have been better.

“It came special delivery with a Buckingham Palace postmark,” said Darrell.
“We realized it wasn’t your average tax bill!”

The 49-year old also admitted that meeting Kate had given his son a welcome
distraction from his illness.

“This is something to talk about with our family and friends,” he said. “It’s
a real morale booster and it was really quite personalized to him and he has
something to cherish for years to come.”

By Jason Chester and Emily Barker / Starlounge Photos: AFP / Getty
Images

(Note: The article above was copied from http://starlounge.za.msn.com/gallery.aspx?cp-documentid=159517986)

Football player inspires, makes social transformation (I couldn’t copy this article onto my post because all rights are reserved by the website but be sure to click on the link and read it, it will melt your heart.)

(Note: I found the link to this post on Bringing the Sunshine)

(Note: I found this video on Amazing AZ)

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

If you’ve given to my cause or you can’t give now, please help me by sharing my cause with others. You can tweet about it like my friend Stan Faryna. This is the tweet he uses: @Nisha360 is a brave, smart young woman trying to make a better world for us all. Please help her do an amazing thing. http://bit.ly/hC7vOu

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 401

Always take what you do seriously you never know who you’re impacting – that’s what I learned today 🙂

It’s 7: 06 PM on day 401 of my journey towards independence and I’ve managed to brush my teeth,  feed myself oats for breakfast, prepare and publish my Disability of the Day feature, type up a few more pages for my mother –I officially raised R1 994–$249 –  for my campaign by typing –I am SO happy – feed myself rice and curry for lunch and tweet about my Clean Water For All Campaign – no luck today but Chrissy (formely @chrissy_bertolo now @ChrissyPappas) made another donation  yesterday and Stan Faryna (@faryna)  announced that he is giving away items ranging from art to beautiful clocks all worth more than $1 000 to people who donate to my campaign read his post – Luxurious decorations for your castle or estate #free – for details on how you can get your hands  on the items that are up for grabs    –  thanks Chrissy and Stan you guys are AWESOME :)–

Last night peaceofmindparent from Embracing Special Needs Parenthood left a comment on my Gratitude Journal of 2011 (see comment below) which made me realize that I inspire people just by being myself and strangely enough after that it did not bother me that my parents had basically written me off as a lost cause and invested all their hopes into my two younger siblings because I knew that my choosing this path that I am on I sacrificed being the pride of my family for being (this is going to sound so self-important please know that that is definitely NOT my intention) the pride of the world. Do you do whatever you do keeping in mind that you’re impacting more people than you know?

Nisha, your wonderful blog appears in my “Tag Surfer” window and I skim it often but today was the day that I finally clicked on a link and looked around your site. I felt more and more inspired by you and your tenacity and your generosity. I was enjoying your gratitude list, scrolling down and thinking how nice it was that you took the time to be grateful, until I got to the end of the list, today, and saw that you wrote “I am grateful for Cerebral Palsy,” and my heart was just completely broken open wide and a lot of sorrow and joy came out. Thank you thank you thank you. You are really inspiring me.

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

If you’ve given to my cause or you can’t give now, please help me by sharing my cause with others. You can tweet about it like my friend Stan Faryna. This is the tweet he uses: @Nisha360 is a brave, smart young woman trying to make a better world for us all. Please help her do an amazing thing. http://bit.ly/hC7vOu

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 400

Using upcoming worldwide events is the best way to raise money– that’s what I learned today 🙂

It’s 7: 24 PM on day 400 of my journey towards independence and I’ve managed to brush my teeth,  drink coffee by myself, publish my Disability of the Day feature, feed myself scrambled eggs for breakfast–I tried to use and fork and knife I eventually got frustrated and ended up using my hands –   type up a few more pages for my mother,  watch TV, feed myself a peanut butter sandwich for lunch,  continue typing for my mother, feed myself chicken wings for dinner and tweet about my Clean Water For All Campaign – no luck.

As those of you who have been reading this blog for a while know there’s nothing I don’t write about which is why you would be surprised to find out that I am a Twihard – a fan of The Twilight Saga (both the books and the movies) –that being said I would like to invite all the other Twihards out there to celebrate the upcoming release of Breaking Dawn part 1 – part 1 of the last movie in The Twilight Saga (see official trailer below) – and help me raise money to build a well in India/Africa at the same time by hosting a Twilight party – the party (if you choose to host it) will basically be you and a bunch of friends getting together to watch or rewatch the last three movies of The Twilight Saga the only difference being that everyone who comes has to bring with them a certain amount of money which you will collect and donate to my campaign at a later time – donations can be made at http://www.firstgiving.com/fundraiser/nisha-varghese/nishavarghese. Do you incorporate your interests into your philanthropic endeavors?

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

If you’ve given to my cause or you can’t give now, please help me by sharing my cause with others. You can tweet about it like my friend Stan Faryna. This is the tweet he uses: @Nisha360 is a brave, smart young woman trying to make a better world for us all. Please help her do an amazing thing. http://bit.ly/hC7vOu

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 399

If something’s not working don’t keep doing it because it’s what you did yesterday– that’s what I learned today 🙂

It’s 7: 36 PM on day 399 of my journey towards independence and I’ve managed to brush my teeth, drink coffee by myself, publish my Disability of the Day feature–I prepared it yesterday night –Facebook about my Clean Water For All Campaign – no luck –  type up three more pages for my mother, prepare my Kid of the Week feature for Sunday, prepare my Disability of the Day feature for tomorrow, tweet about my campaign –still no luck–   feed myself rice and curry for lunch,  watch TV and feed myself yoghurt for dinner.

About four days ago I decided to incorporate the things I needed to learn to become independent into my life – I was no longer going to create situations to practice doing things I would practice doing them when the situations actually arose – sadly things aren’t happening quite as organically as I hoped they would – my mother always insists that I spit the toothpaste into the cup instead of in the sink so that I don’t have to struggle to lean over the sink – so I am switching back to the old method of practice practice practice while my mother is at work especially since I won’t be able to practice when we go to India in about two months time – if you have no idea what I’m talking about refer to Day 355why am I telling you all this to let you know that the only thing worse than doing something that doesn’t work for one day is continuing to do it for the rest of your life. Are you doing what you’re doing because it’s what you did yesterday?

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

If you’ve given to my cause or you can’t give now, please help me by sharing my cause with others. You can tweet about it like my friend Stan Faryna. This is the tweet he uses: @Nisha360 is a brave, smart young woman trying to make a better world for us all. Please help her do an amazing thing. http://bit.ly/hC7vOu

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!

Day 398

Going to church let’s you now if you’re on the right track or not – that’s what I learned today 🙂

It’s 7: 27 PM on day 398 of my journey towards independence and I’ve managed to brush my teeth, feed myself cassava and chutney for breakfast, go to church,  publish my Kid of the Week  feature,  prepare and publish my Disability of the Day,  type up one more page for my mother – I have now earned R719 for my campaign 🙂 – feed myself chicken biryani for lunch,  tweet about my Clean Water For All Campaign – no luck  – and  feed myself  yoghurt for dinner

Today while at church I heard we all have dual citizenship we are citizen of the countries we live in and citizens of the kingdom of God the reverend went on to say that we should shift our mindset from one of ownership – being possessive of our resources – to one of custodianship – acknowledging that whatever we have we have been given to use in service of God and doing as such – which resonated with me because I had felt that way from the moment I started making money of my own and acted on it by donating 25% of my first paycheck to various charities that being said I don’t believe people should nominate me for sainthood or anything of the sort I yell, I scream, I curse, in short I am just an ordinary woman who prides herself on going the extra mile. Do you know whether you’re on the right track or not?

Are we connecting on Twitter? If not, say hi at http://twitter.com/Nisha360

If you’ve given to my cause or you can’t give now, please help me by sharing my cause with others. You can tweet about it like my friend Stan Faryna. This is the tweet he uses: @Nisha360 is a brave, smart young woman trying to make a better world for us all. Please help her do an amazing thing. http://bit.ly/hC7vOu

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!