Day 323

When I die, I want to be
A child in Heaven.
I want to be
A ten-year-old cherub.
I want to be
A hero in Heaven,
And a peacemaker,
Just like my goal on earth.
I will ask God if I can
Help the people in purgatory.
I will help them think,
About their life,
About their spirits,
About their future.
I will help them
Hear their own Heartsongs again,
So they can finally
See the face of God,
So soon.
When I die,
I want to be,
Just like I want to be
Here on earth.

When I Die by Mattie Stepanek

It’s 8: 25 PM on day 323 of my journey towards independence and I’ve managed to brush my teeth, feed myself banana for breakfast, continue reading Love Virtually by Daniel Glattauer, hang out with my brother – he just came back home from a five day stay in the hospital yesterday so he didn’t go to school today – feed myself rice and curry for lunch, tweet about my Clean Water For All Campaign – Stacey Herbert (@mylifestylemax) made a donation although that was before I tweeted about it so I doubt what I did really made a difference LOL 🙂 –  watch TV, feed myself an avocado sandwich for dinner and brush my teeth once more.

Yesterday I was watching the forth-to-last episode of Oprah on which she remembered some of her all-time favourite guests one of whom happened to be then eleven-year-old Mattie Stepanek – Mattie, like his siblings, inherited a rare form of muscular dystrophy, dysautonomic mitochondrial myopathy and was the only one of his mother’s children to live past the age of four but despite all of his challenges he wrote five books – all of which ended up at The New York Times bestsellers list – became a peace advocate and motivational speaker, and lobbied on Capitol Hill on behalf of peace, people with disabilities, and children with life-threatening conditions before he died in 2004 at the age of thirteen – what struck me about Mattie’s story was that he lived his life to the very last second and in so doing left a lasting legacy of love and peace on Earth which really made me think about my own legacy.What do you want to be?

Are we connecting on Twitter? If not, say hi at

If you’ve given to my cause or you can’t give now, please help me by sharing my cause with others. You can tweet about it like my friend Stan Faryna. This is the tweet he uses: @Nisha360 is a brave, smart young woman trying to make a better world for us all. Please help her do an amazing thing.

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!


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