Day 269

We are all in the gutter, but some of us are looking at the stars.
— Oscar Wilde (Lady Windermere’s Fan)

It’s 7:47  PM on day 269 of my journey towards independence and I’ve managed to brush my teeth, feed myself a polony sandwich for breakfast watch TV, tweet about my Clean Water For All Campaign –no luck but I will NEVER EVER give up because I know that the world can be better than it is :)– watch some more TV, feed myself a bread and jam sandwich for dinner and brush my teeth once more.

Last night before I went to bed I visited Love that Max and read Please, stop staring—my son is not a freak. He is just a kid, even if he has some challenges your child doesn’t. He may not notice you are staring, but I do, and it makes me uncomfortable and, at times, sad. Someday, my son may very well notice the stares, and the last thing I want is for him to feel like an outsider in this world. He already has enough adversity to overcome. Treat him as you would any kid: say hello, joke with him, ask what his favorite color or food is. Do anything but stare. Please, don’t stare. – an excerpt from a blog post called What moms of kids with special needs want other moms to know – and since I was too sleepy to leave a comment after reading it I would like to take this opportunity to say to Ellen – Max’s mom – and all the other moms out there who have kids with special needs having special needs myself I have experienced the nasty stares and the whisperings behind my back and I won’t lie it used to bother me in the past but now every time I catch people staring at me I think to myself they should stare I am so pretty. Have you taught your children that they can look up at the stars even when in the gutter?

Are we connecting on Twitter? If not, say hi at

If you’ve given to my cause or you can’t give now, please help me by sharing my cause with others. You can tweet about it like my friend Stan Faryna. This is the tweet he uses: @Nisha360 is a brave, smart young woman trying to make a better world for us all. Please help her do an amazing thing.

Stan’s very sweet for saying so, but feel free to write what reflects you best.

Thanks to all my friends out there who are helping me make my dream come true: to make a better world for all of us!


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